The Challenges faced by Primary Care Givers of Children with Intellectual Disability
Author(s):
Aneesh Joseph, Dr. Anita Machado
Keywords:
Primary Care Givers, Children with Intellectual Disability, Care Giver Burden, Care Giver Distress, Functional Level, Special Education, Special School
Abstract
The primary caregivers in this study understood as the parents in relation to the care of children with Intellectual Disability. Their challenges vary from different aspects like health, psychological, relational, social and economic. The researcher found that most of the respondents of the study felt a mild to moderate burden on caring their children with intellectual disability. Along with their other responsibilities and duties of their family they were compatible in caring their children with intellectual disability. This study used descriptive research design with a mixed methodology based on quantitative and qualitative data. Convenience sampling technique followed for data collection. There were 58 parents as respondents of the study and they were selected from two NGOs in Satara, Maharashtra. This study conducted in 2014. The challenges of Primary Care Givers were measured using caregiver distress scale and zarit burden scale. The study also looks at the interventions of special schools in the developmental process of children with intellectual disability and the usefulness of these interventions in coping with caregivers’ burden and distress. The study found that the respondents’ feel a moderate burden in caring their intellectually disabled children. The economic burden is higher than other factors because the majority of the respondents were from a poor or average income generated families. The intervention of special school education helped them to tackle the challenges. The study also found that care givers are mostly having a positive look on disability.
Article Details
Unique Paper ID: 157384

Publication Volume & Issue: Volume 9, Issue 6

Page(s): 765 - 772
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